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By Louise Kirk
massive christmas extravaganza to help a charity raise awareness and get the name out there x
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My name is Louise Kirk, Here is my story and why i am fundraising for this amazing charity. The Bubble Foundation UK relies on donations and awareness to help save more children's lives and help research painless treatment to save these children. patient because he has a condition called PK13 KINASE DELTA DEFICIENCY. I have a 10 year old son called Adam, he is known as a 'bubble' patient as he had to go through a Bone Marrow Transplant when he was 6 years old in the hope that the transplant would cure him to make him a normal 'healthy' boy. so he didn't have to live a life in pain, full of everything infection going and on weekly treatment. Unfortunately his first transplant hasn't worked so now he is back on weekly treatment of Hizentra immunoglobulin, Until we cant work out the best option for his second transplant his levels are still dropping and also he can become seriously ill if he catches a serious infection. They need to get there name out
What we'll deliver:
Why it's a great idea:
helps children from birth to all ages through bone marrow transplants
Steps to get it done:
How will the money be spent?Total £
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